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| Kids with speech delay |
| Public online group |
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Hi everyone!
My name is Christie. I am delighted to have found this group! Whenever I try to look up "speech impediment/delay" it always comes up empty.
I am involved in some moms groups..but it is always nice to talk to parents who have a similar understanding. Usually when I try to explain that my son has "verbal apraxia" I get blank stares. lol I look forward to talking to other parents, sharing stories or getting good feedback! |
| Posted by on 12/04/2008 11:35 AM
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Hi Christie! Welcome! You have come to the right place! This is a very caring and supportive group. We share experiences, ask questions and even vent once in a while when things get frustrating.
My son will be 3 yrs old in 11 days (ack!) and he is language delayed. We have been working very hard with him, and he has come so far! He lost language around 19-20 mos, and had maybe 5 words. He now speaks fairly clear and is using some 3 and 4 word sentences! He has speech therapy twice a week, (since June) but I feel that is just a break from me, as he doesn't talk as much with the SLP as he does with me! :o)
Read through some of the older posts... you will see I am a strong advocate of fish oil (DHA/Omega3) supplements. Also, check out our Lists/Resources and get some great websites for helping encourage language and even help with articulation! If you have any questions, feel free to ask or PM me. I love to help since I've been researching this for over a year and a half now.
Happy to get to know you! |
| posted by Annette+4 on 12/04/2008 01:01 PM
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Hi Christie, welcome to the group! I understand what you are saying, my son also has verbal apraxia, and I understand it is very challenging, and parents who have children without any speech issues don't seem to quite understand how fortunate they are. We have a great mix of mom's here, all who can understand your frustrations and share your excitement when your little one is making even baby steps toward, what I am finding, is a huge goal.
How old is your son? Mine will be 4 in 2 weeks, and we found out about apraxia almost a year ago. It was so scary and overwhelming for me trying to research and learn and being so new to all of it. Now, things are easier, especially since we are seeing some progress. It seems the more progress we see, the more I am realizing there is still so far to go. But, I have been so thankful so many times over this last year to have this group of caring people here. People who "get it" and won't judge me for being upset or frustrated. People who truely do get excited for little bits of progress and who are also outraged when something mean was done or said to one of the little ones represented here. This group just keeps growing, so we have more resources (each other) to help us on our journey.
Wow, and now I feel like I am giving a speech longer than the presidents! Anyway, Welcome to the group. Join in any of our ongoing conversations. Make yourself at home, and when you feel comfortable with it, tell us a bit more about yourself and your son.
Rhonda |
| posted by Rhonda on 12/04/2008 04:31 PM
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Thanks Annette!
I did try fish oils almost a year ago..but did not stick w/ it..I was going through different "ideas" My son started seeing a holistic nutritionist..who told us to put him on a glutten free casein free diet. He gave us a list of protein pills and shakes we "needed" to give our son.
Plus I had ALOT of people close to me, telling me my son "had to be autistic" because of his language and his fine motor skills..buttoning his shirts and such.
So I just toke a step back and looked into getting him more speech therapy and into a good school setting.
My son is 4 1/2 and has made great progress. I have people tell me now that they understand what he is saying, not everything, but a start is always better than standing still. Thanks for the warm welcome!!
I look forward to getting to know you and others in this group and getting good info. I will have to go back and search the topics you mentioned. Thanks so much! |
| posted by on 12/04/2008 06:27 PM
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Hi, Rhonda!
I definitely agree with you on other moms not always realizing how fortunate they are to have very verbally understood kids.
When I joined different "meetup" groups so I could immerse my boys w/ other "typically developing" kids and just to enjoy being kids and having friends...I had to swallow alot of irritation and bitterness over hearing moms say they were frustrated w/ their kids constantly asking them questions..and my son was struggling to say his name.
I had to realize that I would probably be the same..if all you know is your own experience..it is hard to relate to someone else's situation correctly or w/ more empathy.
I began looking up everything and anything I could on apraxia and tools to help my son find his words..but I think I read way to much on autism and sensory issues and whatever else my inlaws sent me...it is strangely funny how much people relate apraxia and autism as one and the same.
I have reached a point were I am able to smile at "advice" and understand that the person is trying to help me...even if they say "obviously what you are doing is not working" everyone has opinions.
My son will be 5 in March. He is doing wonderful sentences..he is not always clear and he makes me scratch my head alot..but I see great progress...maybe that is why I have reached a place of more peace. ;)
Thanks for the great welcome. I look forward to talking with you more. |
| posted by on 12/04/2008 06:42 PM
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Hi christie,
I have a son 7 and a daughter who is almost 5. They are both speech delayed. I have been working with my son since he was 27 months old. I am proud to say you can understand 99% of what he is saying. I am working with my daughter now and having a bit of hard time but, we are hopeful. She is just hard headed like her mommy. lol. It is nice to see other people with the same mile stones in life. |
| posted by henrietta on 01/25/2009 09:32 AM
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