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| Need to Vent Group |
| Public online group |
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| I was in a head-collusion about a year and half ago. I messed my knee up really bad. My entire body has been hurting everyday since. Lately it's been ALOT worse. I've finally had enough of this pain and I went to the doctors today. He told me he's pretty sure I have fibro. and he thinks I may have lupus. I have to get tested this week. Anyways, I called my dad to let him know what the doctor said. He started flipping out on me saying I need to train my mind and theirs books that can help me THINK I'm not in pain. And the doctor is going to drug me and fuck my hole body up and it will lead to other problems. I told him that my mother in-law has it and she's the person I will talk to about things since she is the person that would know. Then he told me that since I have all these problems that my husband and I shouldn't try having another baby. I was so upset. Who is he to tell me what I should do when I'm a grown-up. He told me that I need to get over the fact that the accident happened and move on with my life. I am over the fact the accident happened. But fibro comes from accidents and illnesses. It just makes me so upset that he would yell and scream at me over this. I can't pick and choose what kind of health problems I have wrong with me. I'd pick no health problems if I could. But the fact is that I'm in extreme pain everyday and I feel like I'm going to puke all freaking day. Would he rather want to know what's wrong with me or let feel like I'm going to die all the fucking time. I have enough stress in my life from just going to the doctors and the last thing I want to hear is that I need to get over it and stop thinking theres something wrong with me. Then I told my sister and she said you don't have any of that shit. I feel like shit. complete shit. I'm in pain and no body believes me. My husband and he's family believe me. But mine doesn't. It's so stressful and I'm having a hard enough time as it is right now. I just wanna cry and cry...... |
| Posted by Kris on 07/07/2008 10:03 PM
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| Oh I am so sorry to hear about it.I wish there was something could say to help you out but I am at loss,I had recently found out I have fibromagia and there isn't really much i can take for it except muscles relaxers on the night it geets too bad,I don't cause of kids.You could try taking hot baths for pain and try heating pads they help a little.I hope things get better for you. |
| posted by Crystal on 07/08/2008 03:07 AM
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| Oh I am so sorry to hear about it.I wish there was something could say to help you out but I am at loss,I had recently found out I have fibromagia and there isn't really much i can take for it except muscles relaxers on the night it geets too bad,I don't cause of kids.You could try taking hot baths for pain and try heating pads they help a little.I hope things get better for you. |
| posted by Crystal on 07/08/2008 03:07 AM
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| Have you had any babys since you've had fibro? I'm just am wondering how hard it can get having a newborn. I really want to have another baby but I don't know how I'd be able to handle two kids and a newborn. I'm sure I'd be alright I am just nervous. |
| posted by Kris on 07/08/2008 10:46 AM
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| I understand how you feel about you family. They are the ones that are supposed to be there for you and it feels like they are turning their backs on you. The same thing happened with my family when my husband was diagnosed with cancer last September. An example...when I asked my mom to watch my now two-year-old daughter during one of my husband's chemo weeks so I could get some stuff done around the house she gave me a hard time about it and said "everyone is busy this time of year." It was at the beginning of December. That didn't stop her from having my niece and nephew that entire weekend. When we found out my husband's chemo wasn't working which sounded like a death sentence at the time my sister offered to watch my daughter that night so we could be alone. A couple hours later my best friend called to tell me my sister didn't want to cancel her plans so she asked her to babysit for me. I didn't even ask her to do it, she offered. I haven't talked to my mom since March and my sister since February because I got sick of not knowing if I could count on them or what their response was going to be if we got more bad news. I completely understand what it's like to have your family treat you like it's your fault when it's not. I feel for you. Be strong. |
| posted by Cinda on 07/08/2008 01:12 PM
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| My best friend has the same prob with her family...they are very unsupportive and can be downright mean. I told her that she should say to them, "THis is how I feel, I'm sorry you don't believe/support me. You raised me to be the person that I am and I am greatful, however I think it is time that we took a break from each other so as to reexamine our relationships with each other. If you need to talk to me, I will always answer the phone but I will not submit myself to any conversations that are degrading or mean. We have a difference of opinions and that is ok, I respect your opinion and I am only asking that you do the same for me." And then wait until they call you. It will be hard, but in the end I think they will come around because they are your parents and they love you, even if they have a hard time showing it. |
| posted by Katie on 07/15/2008 09:42 AM
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| My best friend has the same prob with her family...they are very unsupportive and can be downright mean. I told her that she should say to them, "THis is how I feel, I'm sorry you don't believe/support me. You raised me to be the person that I am and I am greatful, however I think it is time that we took a break from each other so as to reexamine our relationships with each other. If you need to talk to me, I will always answer the phone but I will not submit myself to any conversations that are degrading or mean. We have a difference of opinions and that is ok, I respect your opinion and I am only asking that you do the same for me." And then wait until they call you. It will be hard, but in the end I think they will come around because they are your parents and they love you, even if they have a hard time showing it. |
| posted by Katie on 07/15/2008 09:42 AM
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| Family can be a pain at times I think most all of us have been there. If you are in agony every day do you have to take pain meds for it? The reason I ask is because if you are thinking about having another baby think about what stress you are going to have to put yourself through and if you are going to be miserable that could be a bad experience. I hope you don't have lupus i hope your tests go well but if you do make sure you do a lot of research on how that can affect you or a baby since you would have to be on meds. I know it sucks to hear all that but think about it because you don't want something bad to happen that can affect the baby. I hope you feel better i was also in an accident that messed up my knee but it was 12 years ago and i just get pain in the winter. |
| posted by Kristhal on 07/15/2008 11:19 AM
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| My dad is now asking how I feel and everything as if nothing happened. I went to lunch with him yesturday and he was asking when the blood work comes back and how i feel etc. My sister doesn't ask at all unless I sound horriable over the phone. My mom is asking about it but mostly tries to ignore it. Most of our family is ignoring it. My stepson is six and I know it's hard for him to understand but it's like he knows when I feel like crap so he acts up. We went shopping yesturday and he kept acting up. I finally had enough between the pain and him I went home. My dad keeps telling me to keep doing things and not let it affect me. But when I'm on the edge of throwing up it's like it does stop me. I take over the counter meds right now. I go back to the docs on monday. I found out I'm not pregnant so hopefully he can give me something to atleast narrow the pain a little. My husband keeps telling me everything will work out and he will help out more but I have yet really seen it. I have to nag to get him to do things. He did vaccum today but only the living room (don't know why it's just the living room). I just dont want to do anything anymore. |
| posted by Kris on 07/15/2008 04:29 PM
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hey,
don't worry about what anyone thinks just focus on how to get better. my step mom had fibro for years she was always tired and her whole body ached all the time. She is 54 she started walking every day even though she did not want to get out of bed she did it anyway. She stopped smoking cigarettes too. I never thought she would overcome it, but she did! Get all the info you can. Don't worry about what people think or say, they probably don't know their ass from a hole in the ground! |
| posted by heather on 08/30/2008 10:33 PM
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| People don't realize how much pain you are really in. My mom fell & broke her hand April 2007 and has been in horrible pain since. She was diagnosed with Complex Regional Pain Syndrome (a lot like fybro). It affects the central nervous system and sends out pain signals to the entire body. So even though it was her right hand, her back, neck, left arm etc has constant pain. They gave her Lyrica and also a heavy duty pain pill for the really bad times. Also, depression will go hand in hand with this (also because of CRPS) so that also affects your mood. It is hard for anyone else to understand the pain & hurt you're in. Maybe if your father is near you should have him go to the doctor with you and let the doctor explain to him so he can grasp it. If you need to talk, ask questions, vent, whatever, please feel free to email me. Hope this helps a bit. God bless ~ |
| posted by Cooper's Mommy on 09/07/2008 07:59 PM
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