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i have 4 boys and my youngest who is going to turn 1 in july has been having problems. he's been in physical therapy since he was around 4 months because of the way he was positioned when i was pregnant. his muscles were tight and he had torticollis and plagiocephaly. we found out when he was 7 months old that he has asthma. for awhile he had been sick with a virus he couldn't get over and he was also teething and started to lose weight (my middle child also went through this) when he started putting the weight back on he wasn't gaining like they wanted him to so his pediatritian referred him to st. louis children's hospital. we went there and they did all kinds of blood work, they also want to do a cat scan and echocardiogram but they haven't got back with me for an appt. this was almost 4 weeks ago and i haven't heard anything. they sent a letter that they sent to his regular doctor that had several things it could be the first being a form of lung disease and the second some sort of genetic disorder. so many people tell me not to worry but it's hard not to especially when you get that in the mail but haven't heard one word from the dr's offices.
Posted by mindy on 06/28/2008 03:08 PM

So sorry you are going through this. I would just call the Doctors office and see if the results are back. Sometimes they get it and don't think about it. I know it is hard and I hope that you get some answers soon. You could also ask your therapist if he/she could explain it or know someone that can. I know when my youngest was getting help they offered that service to me.
posted by Marie on 06/30/2008 01:38 PM

I am so sorry you are going through this. First of all you have to be pushy and get answers. Call and request copies of the results from the hospital as well as anything the Dr. has done. Even go so far as get the therapists notes. You should have copies of everything, because if one person is not taking the bull by the horns (Dr.'s and Hospitals) then by all means you should. You are your child's own advocate. I hope I don't sound pushy or like I'm telling you what to do, but my husband and I have had to do some Dr. rearranging in the last year because we felt that they weren't doing what they needed to do for our son and they weren't giving us answers in layman terms. Our son has Albinism or most people know it by saying a"Albino". Although what we have and will go through many obstacles they are nothing compared to what you are going through now. But if there is ever a time you need help or need to chat let me know. Lisa
posted by Lisa on 08/20/2008 11:07 AM

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