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Kids with speech delay
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Hi
Hi my name is Brandi i'm a mom to a 2 year old named Austin who has just started the beginning evaluations to start speech therapy due to lack of muscular strength in tongue and jaw muscles. This is really hard for me because there's so many signs i should have seen early of and didn't do ne thing about it til now. i feel horrible but we have to wait til may7th for the actual therapy to start!
Posted by Brandi on 04/15/2008 11:07 PM

 
Brandi,

Please don't beat yourself up over this. It's easy to do, but as moms we have to remember that we all love our kids, and want the best for them, but we aren't psychic. We can't always predict if there is a problem. Sometimes the signs are hard to read. If he is anything like my 2 y/o (who also has a speech delay) he was showing some regression in certain areas, but showing a lot of strengths in other areas. Aidan (my son) wasn't talking, or even making a lot of sounds in the beginning, but his motor skills were great. At first even his doctor told me not to worry about it. I look back on it now and think "how could I not have seen this earlier" but everyone kept reassuring me that I had nothing to worry about.

My son's symptoms sound a little bit like your son's. Aidan has been in therapy since June of '07, and he's slowly showing signs of improvement. It's a difficult process to go through for all involved, but it does get better. Once you see the progress he makes in therapy I'm sure you'll slowly start to feel better. In the meantime just give him lots of love, and don't beat yourself up. Try to just take things one day at a time.

Erin
:)
posted by Erin on 04/16/2008 11:42 AM

Hi Brandi.

I personally think the waiting is the hardest part of the whole process. After my son was evaluated by a speech therapist there was a wait of about a month before he started therapy. I drove myself absolutely nuts, trying to read everything I could and find out what we could do (besides just waiting) to “fix” the problem. Well, I have to say, there were several good things that came out of that month. For one, I found this group, which is very supportive and understanding of what we are all feeling or have all felt at one time or another. If you read through the posts here, you will see that a lot of us can relate to feeling like we should have figured it out earlier. Erin is right, we are mothers, not psychics. We do the best we can. You are doing the best you can, and you are getting help for your son, and you are trying not to drive yourself crazy during the waiting process for the therapy to start :-) We can all relate!

I had to keep reminding my self that there was nothing different about my son after we got his diagnosis. He didn’t develop the problem on the day we found out a name for it (dyspraxia for my son Arden), it is the same problem he has always had. He is the same great little boy and really, a few more weeks of waiting (for therapy to actually start) isn’t going to make a great difference in the whole scheme of things.

Just remember, if you need to chat, worry, vent, or need a shoulder, there is a whole group here who are willing to listen and help in any way possible :-)

-Rhonda
posted by Rhonda on 04/16/2008 10:48 PM

Hi Brandi-

Good luck with the first therapy session. Please let us all know how it goes!!!

-Rhonda
posted by Rhonda on 05/06/2008 09:42 AM

Hi Brandi! Excited to get to know you and and Austin!
Don't feel bad about waiting.. I think we all want to give our kids the benefit of the doubt as well, and let them progress at their own rates without "assuming" anything is really wrong. Sometimes it's just the luck of the draw, and as long as we are aware and watchful, a lot of things can be done in time.

You are a great mom for being active in getting Austin therapy. I think I am still in a bit of denial, given what I have been told by docs and friends about their kids not really talking well until 3 yrs old. I have been holding out on the official therapy, and trying to work with my son as much as possible. I have been learning some of the techniques and adding my own instinctual activities as well.

I have 3 other kids, and it's a bear trying to schedule a check-up or a sick visit. Getting involved in a strict therapy session has been a bit intimidating for me. Although we have seen great progress and advancements take place in Jake, it may still be in our very near future to have a little extra help.

Today is the big day! Let us know how it goes! I always have the secret hope that things change overnight... for everybody with any kind of issue. :o)
posted by Annette+4 on 05/06/2008 09:54 AM

Well we have to wait. until the 8th. The head therapist had a mandatory meeting called in springfield. We also found out that our insurance approved his therapy so we will not have to pay for it out of our pocket with is great!!! Also just since his evaluation he'd added about 20 words to his vocabulary. He's still slurring a lot but he's trying so we are making small steps in the right directions. He's also going to have developmental therapy for his clumsiness. which is great because he's left handed...and with me being left handed i know how clumzy we can be so they are going to work with him on that to get him to stop running into things! I will keep everyone updated
posted by Brandi on 05/06/2008 10:04 AM

I re-read my post, I don't know why I was thinking today is the 7th... geez. LOL
Man, that would be so frustrating to have to wait, then add another day to the wait when the time was almost here! Hang in there though, because adding 20 new words since his evaluation is amazing! Yay! That will make the wait a little easier... seeing him progress on his own. What a great advancement! (and the therapist doesn't get credit for it!)

Thanks for updating... can't wait til Thursday to hear all about it! :o)

posted by Annette+4 on 05/06/2008 10:27 AM

oh, and that's great about your insurance... although, I think the state usually picks up the tab for Early Intervention Services. Fabulous either way!
posted by Annette+4 on 05/06/2008 10:28 AM

that's who's paying for it. we have the medical card..and you have to be a certain limit behind before the medical card will cover it! which thank god they will. He is going through early intervention. I've already met both of his therpists and they are young and energenic which is great. And from what i saw from the evaluation he likes them both because they have toys! My husband and I are so ready for this. The only thing that's going to be hard is i'm going back to work...after 3 years of being at home(since i was 3 months pregnant) so i get to make some adjustments!
posted by Brandi on 05/06/2008 11:15 AM

Congrats on the progress!!! How exciting-20 words in less than a month, that is wonderful! What a relief that the insurance is going to pick up the whole bill! I really wish we had that type of coverage for my son.

At least they rescheduled the therapy to start only 1 day later. I know the waiting is so hard, but at least you are seeing progress while you are waiting. Good job with whatever you are doing!

Definitely let us know how it goes, how the therapist is, and if she gives you some good ideas about what to work on at home. How long is the therapy session scheduled for? Do they have a way for you to observe what is going on, or are you in the room with them, or are they just going to tell you about how it went at the end?

-Rhonda
posted by Rhonda on 05/06/2008 11:22 AM

all of this therapy will take place in my home. So i will be right there with him. This appointment this week is setting up treatment..How long, how many days a week, how extensive that kind of stuff. I'm assuming each therapy day will be about an hour long. probably 3 times a week. I've met both therapists and they are great. Austin seems to like both of them. He has tons of energy and it's hard to get him to focus for too long so are hoping to work on that. The first thing they are going to help me with is how to understand a chart, so we can start potty training! Because he can't communicate with me when he has to go..he just lets it go!! typical boy i guess! But thursday can't come fast enough!!
posted by Brandi on 05/06/2008 12:12 PM

 
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