Congenital heart disease is considered to be the most common birth defect, and is a leading cause of birth-defect related deaths worldwide.
Despite the fact that congenital heart defects affect millions of families, a relatively small amount of funding is currently available for parent/patient educational services, research and support.
Thanks Lisa I am still having a hard time taken it in that CHD don't have all the funding they need. We were told that when tristan was born but there are so many uneducated doctors and nurses about it in most hospitals. Then you find the specialists and they have been doing it for years and you wonder why no one every told you about this before. It is crazy.