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Parents of Children with Sensory Needs
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When did you realize something was not quite right?
Sometimes new moms don't know what sign to look for, I remember this cousin who had a kid with a major motor problem but actually was the grandmother who realized the problem first, even before the pediatrician!

So it would be great if you could share what was the first thing that really alarm you.

Vero
Posted by Vero on 03/14/2007 12:03 PM

 
Great question! I noticed within the first few days that my son couldn't eat well. I also noticed that he wasn't making sounds right the first few months. I finally got a doctor who suspected a speech delay and not a crazy mom. I was looking for trouble because we have a family history. I think around 18 months is the typical time to really see there is some problem. I kept hearing "I never saw a kid like this" from family. I think that is a huge clue that there is something amiss. Be prepared for family members to make excuses and say there is nothing wrong. Most my family thought because my son acted different it was something special and not a problem. I am glad your cousin had good advise.
posted by Anna on 03/14/2007 01:02 PM

my son jake was always a hand-full from the time he was born. being a new mother, i had no clue. we didn't live close to too many friends or family, and the doctors were no help. i was always told that he was "fine" or he's just going thru some "stage". me and my husband could see that he wasn't normal. at about 1 1/2 he started getting what we thought was a lazy eye, and would just stare off into space. doc's told us we were" crazy". we started fighting with doctors then. a friend said we needed to find something to keep his attn.. and that would help his eye. we got him a v-tec smile, witch did help. but he got board with it. we finaly gave him a playstation 2. we've had no eye probs. sence then. they say he has perfect hand-eye cornation now. but the doc's don't aprove. this comming from people that don't think that my son has a prob.?!!! just in the last year, we finally got some help with him, the dx is a.s.d. with sensory disorders. all i can say is "FINALLY!!!!"
posted by lea on 10/22/2007 01:36 PM

I noticed from the time my son was around 5months old because he would become extremely irritated if his hands were dirty in any way.  He began punching himself around a year and a half when he became angry. He was not talking as other children were, although the doctor kept telling me that he just needed more time and kids are not all the same.  Going through stage supposedly would grow out of it! My family has never truly understood what it is he feels or goes through daily just to try and eat what they feel he should eat. I have my son in different sensory therapy and speech therapy groups twice a week, but I just accept him for who he is and grow with him along the way.  He is such a good boy with an amazing personality.  Love him so much...

posted by christina on 12/01/2010 01:59 AM

 
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