MY NAME IS JESSICA A MOTHER OF THREE BOYS. ONE IS MY SPECIAL NEEDS CHILD. HE WAS DIAGNOSED WITH INFANTILE SPASMS, WHICH IS SEIZURES AND DEVELOPMENTAL DELAYED. NOW I HAVE BEEN THROUGH A LOT WITH HIM. HE IS NOW CLOSE TO 22 MONTHS OLD BUT SINCE HE WAS 5 MONTHS OLD IS WHEN I FOUND OUT. HE HAS BEEN THROUGH SO MANY BLOOD TESTS AND EVERYTHING CAME OUT NEGATIVE. HE WAS VERY HARD TO POKE HIM. THEY COULDN'T FIND ANY VEINS. HE GOT SICK ONE TIME LAST YEAR IN OCTOBER. HE ACTUALLY LOST 3 POUNDS. HE WAS VERY WEEK. YOU CAN SEE HIS RIBS. I FOUND OUT THAT HE HAD NEUMONIA. HE WAS ALWAYS COLD ON HIS LEGS AND ARMS. THEY HAD TO PUT A CENTRAL LINE IN HIS THIGHS. HE HAD TO HAVE SURGERY. THEY PUT A NISSEN FOR HIS REFLUX AND A G-TUBE. HE COULDN'T EAT BY MOUTH. SINCE THEN HE HAS BEEN DOING GREAT. HE GAINED HIS WEIGHT BACK. IT TOOK SOME TIME BUT IT IS WORKING. HIS DEVELOPEMENT IS DELAYED. /HE CAN'T DO WHAT A BABY HIS AGE CAN DO. THE ONLY THING HE CAN DO IS ROLL OVER. HE CAN'T SIT. HE CAN'T WALK, HE CAN'T TALK, HE CAN GRAB BUT THE LETS GO. SO HE HAS THREE THERAPY SCHOOL. THE BBUS PICKS HIM UP AT 7:30 IN THE MORNING AND COMES BACK AT THREE IN TH PM. TODAY HE GOES THE SHANDS HOSPITAL IN GAINSEVILLE FOR AN UPDATED EEG. THE TOMORROW ANOTHER DR'S APPT TO SEE THE SURGEON. LAST WEEK HE TOO ANOTHER SWALLOW STUDY TO SEE IF HE CAN START EATING BY MOUTH. I CAN START GIVING HIM LITTLE BITS OF MILK WITH HIS BOTTLE. THERE ARE LOTS TO TELL BUT FOR NOW I HAVE TO GO AND GET HIM READY FOR TE BUS TO GO TO SCHOOL. THEM I WOULD HAVE TO PICK HIM BACK UP TO THE DR'S. BUT I WAS LOOKING FOR A OUTSIDE MOTHERS GROUP HERE IN OCAL FLORIDA. SO I CAN INTERACT WITH OTHER MOTHERS THAT HAVE SPECIAL NEEDS KIDS.

THANK YOU FOR READING MY STORY. I HAVE BEEN HANGING IN THERE FOR A WHILE BUT NOW I START TO CRY SOME TIMES BECAUSE I STILL HAVEN'T SEEN THE GENETICS. I DON'T WENT THEM SAYING THAT MY SON IS RETARDED OR HAVE SOMETHING ELSE. SO FAR THEY AHVEN'T ANYTHING ON WHY HE HAS THE SEIZURES.