Hi Everyone!!!
Much credit to the Mom's of Special needs children, nobody knows until you live it what it's like. It can be very isolating and lonely and you know you're doing the Best thing in the world, taking care of your child better than anyone can But that doesn't make it exciting or fun and you loose out on the adult interactions. It won't last forever, our children will start school soon although it seems like forever and then you can go back to work and like Maria said don't believe the jargon about you not being able to get a job, anybody questions why you didn't work for 2-5 yrs and you tell then b/c you cared for your special needs child, you should be commended!! I have my moments when I struggle with being home, I don't have a choice though, I did want to go back to work after having my son 19 months ago today But he was born 2 months premature, with an enlarged heart and needed a Heart Transplant to survive...he was on a ventialator for 4.5 months and 13 IV's going to every part of his body...he weighed 3lbs and they said he'd never make it to 6lbs for the new heart but he Did....he was 3 months old and received a Heart Transplant!!! He's our lil Miracle and we were told numerous times he wouldn't be here....we found out from a muscle biopsy that he has a Mitocondrial Myopathy, a muscle disorder....so he is 19 months old and can only sit up, can't crawl or walk or even bear weight through his legs....he's getting PT twice a week, OT once a week and Speech once a week and he see's numerous dr's for his Heart! We go through alot everyday and it's just me during the week, his dad is in Florida and comes up on wkds...SO believe Me ...I KNOW how hard it is and I have my moments, even with a Miracle baby who wasn't supposed to be here, that I think WOW I miss work BUT I know all my hard work with my son will pay off in that 1 day he'll walk and catch up to his peers.....we couldn't hold him or pick him up for the 1st 4 months, nobody could so he also has sensory issues...but ya know what also gets me through this unexpected world I never thought I'd be part of....there are others out there that have actually been through alot more than us and they manage and they still get through....I cried b/c I had no shoes until I met someone who had no feet!!!!
Good Luck Mama's...you're doing a Great Job!!!! At least when we do go back to work we'll know we did the Very Best we could for our children ;-) |