An introduction - Mothers of Children with BHS - Post | RaisingThem.com

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Mothers of Children with BHS

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An introduction

Hi! My daughter has had cyanotic episodes since 3 1/2 months. She is now 20 1/2 months. They are of the severe kind, meaning she always passes out as a result and she has them on average every 3 1/2 days although she can have them everyday for a week and 3 times in a day. Information about BHS is scarce. I've read the same thing time and time again. Besides looking for better information and new and alternative ways to treat BHS, it would also be nice to connect with others that are caring for a child that has BHS. Im thankful for its benign nature, but Im starting to recognize the emotional hardship that is part of this experience as well. Let me know if you are out there.
Posted by K. on 06/30/2007 01:07 PM

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