I AHVE A 21 MONTH OLD BABAY BOY WHO WAS DIAGNOSED WITH INFANTILE SPASMS WHEN HE WAS 5 MONTHS OLD. AND HE IS ALSO DEVELOPMENTAL DELAYED. HE WENT THROUGH SO MANY TESTS AND NOTHING HAS BEEN FOUND. HE WAS ALWAYS HARD TO DRAW BLOOD FROM. INFANTILE SPASMS ARE SEIZURES. THE NEURO LOGISTS HAS BEEN GIVING HIM ANTI SEIZURE MEDICATIONS. SO FAR I DON'T THINK THEY WORK. MY SON CAN'T WALK, CAN'T TALK, CAN'T STAND, BUT HE STARTED TO ROLL OVER. THAT WAS VERY GOOD WHEN I SAW THAT. WHAT GOT ME MAD WAS THAT HIS NUEROLOGISTS TOLD ME THAT HE WOULD MAYBE SIT BUT HE WON'T BE ABLE TO DO ANYTHING ELSE. BUT NOT TO LONG AGO HE SHOWED THE DR. THAT HE CAN DO MORE. THE FR. WAS SHOCKED. HE DIDN'T KNOW WHAT TO SAY. BUT THEY CAN'T FIND WHAT IS STARTING THE SEIZURES. IT HAS TAPPERED DOWN BUT SINCE HE IS STILL TEETHING HE GETS SMALL SPASMS. I'VE BEEN GOING THROUGH THIS FOR OVER A YEAR. THE ONLY DR. HE HASN'T SEEN YET IS GENETICS. I KEEP ON CANCELLING IT BECAUSE I'M AFRAID THAT THEY SAY HE MIGHT HAVE SOME KIND OF A SYNDROM. LIKE MENTAL RETARDATION OR SOMETHING ELSE.

A LOT OF PEOPLE FEEL BAD THAT I AM GOING THROUGH THIS BUT THEY ALSO TELL ME THAT I AM STRONG GIRL. HE HAD TO HAVE SURGERY BECAUSE HE ASPERATED. IT WENT DOWN THE WRONG PIPE IT WENT DOWN THE LUNGS. AT 17 MONTHS OLD HE HAD HIS 1ST NEUMONIA. NEVER GOT SICK BEFORE THEN. YOU CAN SAY IF I DIDN'T TAKE HIM IN HE WOULD HAVE DIES. HE GOTTEN SO SKINNY. HE LOST 3 POUNDS. SO HE HAS A G-TUBE WHICH IS ACTUALLY A BUTTON AND A NISSEN DONE. HE IS GAINING HIS WEIGHT BACK. THANK GOD FOR THAT. I THANK GOD ALL THE TIME FOR HELPING ME WITH MY LITTLE ONE.

SO CAN ANYONE HELP ME OUT AND TELL ME SOMETHING THAT I NEED TO KNOW? WHAT AM I MISSING?